100collage2-2.jpg
 

FAMILIES

If you are a new family a good place to go is "Start Here", where you will find a collection of information to help get you started on what is available.

We are currently using a Facebook Group to connect with other families experiencing the affects of genetic changes that alter the DYRK1A gene. We are a small but growing community that hopes to provide support, information and resources. We hope to spreading awareness of the affects that occur in DYRK1A  Syndrome. We are currently connected with 170 families across the world! See the map below to see the location of families.

"It is truly amazing how this group has begun to reach across the world, uniting families together who felt so alone with the news. While social media can have its drawbacks, this group is a light, shining across the oceans. But mostly as a grandparent, it makes my heart swell to see all these beautiful, smiling faces and know that each of them is such a blessing to us all. "   — Leslie Ray