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2019 Seattle DYRK1A Family Meetup Conference

Amy Clugston, DYRK1A Syndrome US

  • Meetup Planning committee, Thank You!

    • Adrianne Apodaca

    • Julie Hutson

    • Carolle O’Neil

    • Amy Clugston

  • George Gillespie, Thank You!

  • Board of Directors, Thank You!

    • Amy Clugston

    • Adrianne Apodaca

    • Priscilla Guzman

    • Ashley Allen

    • Jennifer Carfora

    • Ted Hans III

Jennifer Tjernagel, Simon Searchlight

Jenna Hutson & Madi Holbert, Sibling Panel

  • Jenna is a older sister to Jayce and Madi is a older sister to Jackson, they shared what it was like growing up as siblings and answered questions from attendees.

Raphael Bernier, PhD - Welcome

  • Dr. Bernier from Bernier Labs welcomed speakers and kept us on track.

Rachel Earl, PhD - Recent Published Findings & Tiger Study Update

Soo-Jeong Kim, MD - Pharmacologic Intervention in Neurodevelopmental Disorders

Karen Bearss, PhD - Behavioral Strategies

  • Presentation Slides

    • Understand “why” a behavior is occurring

    • Learn how to assess your child’s behavior

    • Review treatment options for challenging behaviors

  • Slides & Audio (Coming Soon)

Lynn Vigo, MSW, LICSW - Mindful Self-Care for Parents

  • Presentation Slides

    • Increase awareness and understanding of stress associated with parenting a child with extra needs

    • Identify 2 good reasons for caring for self while caring for others.

    • Identify 2 mindfulness strategies aimed at reducing stress.

  • Slides & Audio (Coming Soon)

  • Lynn Vigo, Voices of Autism 2017 - Video

Caitlin M Hudac, PhD - Small Group Discussions

  • Dr. Hudac lead us into small groups discussions

    • Under 3 Years

    • Preschool Age

    • School Age

    • Transition & Adult Stage

    • Adult Siblings

Pajama Ice Cream Social Dance

  • Last year our Pajama Ice Cream Social Dance was a huge hit so we brought it back this year.

  • Seeing the smiles on the kids faces makes it a much needed activity.

  • This year we were able to hire a DJ Duo that included a young adult with Autism

Woodland Park Zoo

  • Many of the families enjoyed a day at the zoo to end their Meetup Fun

View the shared  album  full of photos

View the shared album full of photos

 
Board of Directors; Ted, Jennifer, Priscilla, Adrianne, Amy, Ashley

Board of Directors; Ted, Jennifer, Priscilla, Adrianne, Amy, Ashley

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Jenna & Madi with a sibling perspective

Jenna & Madi with a sibling perspective

Raphael Bernier introducing Rachel Earl

Raphael Bernier introducing Rachel Earl

 
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