2019 Seattle DYRK1A Family Meetup Conference


  • We have a group rate at Crowne Plaza Seattle Downtown for $179 a night.

  • Reserve by phone 1-877-410-2551 or at Reservation Site, just put in the days and the rates will show.

  • Book by May 19th to get the group rate.

Friday, June 21st, 2019

  • 4:00pm to 7:00pm - Speakers & Pizza Dinner at Hotel

Saturday, June 22nd, 2019

  • 6:30am to 9:30am - Breakfast Buffet Vouchers at Hotel

  • 10:am to 4:00pm –  Speakers & Lunch at University of Washington

  • Break for Dinner on your own

  • 7:00pm to 9:00pm - Super Hero PJ Ice-Cream Social Dance

Sunday, June 23rd, 2019

  • 10:00am – Family Fun Outing Activity, location is still being decided.

Other Details

  • Register

    • Go to Eventbrite to register for the event

    • Registration ends on May 21st 2019

  • Facebook Group Event

  • Travel;

    • Link Light Rail This can take you from the Airport (Sea/Tac Airport Station) to the Hotel (University Street Station) and from the Hotel (University Street Station) to the University (University of Washington Station)

  • Donations;

    • Since we aren’t charging for the event, please consider donating and/or asking for donations.

    • To make the Hotel more affordable we are paying $50 of the $229 group rate making it $179 a night, please participate in fundraising.

    • Our Fundraising Page - https://www.mightycause.com/story/Dyrk1a2019  Note: We are in the process of becoming a Tax Exempt Org, in the mean time we will still go through SWAN USA for this site.

    • Donations can also be sent to DYRK1A Syndrome US, 1745 Lorna Ln, Otsego, MI 49078.

    • These donations will be used to cover the cost of food, venue and activities.

  • Scholarships;

    • Some of these donations will be used to offer a scholarship to a few families.

    • If we get enough donations we will offer more.

    • To apply for a scholarship fill out this form.

    • Applications end on April 1st 2019

    • Awardees will be notified by April 15th 2019

  • Tiger Study;

  • Questions;

    • Contact, Amy Clugston - aclugston@swanusa.org